juliet martinez
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Me in Ouray, Colorado. Joel was making me laugh.
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Tue, Nov 28 2006
Zen

A lot of the grief I've felt over Paula's diagnosis has revolved around an unspoken question: Why? Is it genetic? Did I do something wrong while I was pregnant? Was I not in good enough health to expect a healthy child in the first place? Did I bring this on myself and Paula by failing to resolve my own issues around being a caregiver and in doing cosmically attract a child with health issues?

Then it hit me the other day: all over the world people are born with (and acquire) physical and other kinds of problems. Why not my kid? It suddenly "clicked" for me: we're just part the whole mess of people being born, loving, working, making mistakes, raising kids, getting sick, dying. This is life. This is what it means to be alive and human.

I think part of the freedom this realization gives me is that this is not about blame. I don't have to take responsibility for Paula's hearing loss, or any other struggle she may have. She's just a person with challenges like so many people around the world. From the beginning of time we've been born this way: flawed or imperfect or human, however you want to put it. It's okay. It has nothing to do with me personally.

Truth is I'm happy I have Paula. She's a treasure, from the purple hearing aids and curly dark blond hair to her red sparkly shoes on the wrong feet. When she falls asleep at night and I can just look at her, I wonder what I did to deserve her.

That is not to say that I am filled with gratitude for her hearing loss, or her apparent propensity for chest infections and allergies to wood. I am not brimming with sentimentality over "my little angel." She's a two-year-old! She's just a normal two-year-old who can't hear very well, and she's mine and I love her.


Posted at:Sun, Dec 03 2006 09:02:20 PM
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Mon, Nov 20 2006
I just needed a good slumber party

Last Friday I spent my first night ever away from Paula. Yes, just one more way in which I'm damaging her for life. But it was so much fun!

I went to the Illinois Hands and Voices 2nd Annual Mom's Night Inn at the Oak Brook Mariott, about 45 minutes drive from my house. I spent all Friday diligently wearing Paula out, which is to say I took her over to my friend Jacqueline's house where we made cupcakes, cooked, ate, played with the baby, and she roughhoused with the boys until mid-afternoon. I put Paula to bed at six, then threw my overnight bag in the car and drove to Oak Brook.

When I got there I saw one mom I knew from the Parent-Infant Institute at ISD last summer, so I sat next to her in the big circle of chairs set up in one of the hotel's banquet rooms. I had been a little nervous about Meeting New People, so I was glad to see a friend. Not that I dislike MNP, I just get a little bit nervous when I know I'm going to be somewhere where I don't know anyone. Anyway, once I saw Karen, I didn't worry.

As an aside, I think someone should do some research into a possible link between being named Karen, Debbie or Mary and giving birth to a deaf or hard of hearing child. There were quite a few women with those names at this event and I couldn't help but wonder ...

Well, the event opened with a nice presentation about guilt, grieving and emotional health. It doesn't sound that fun, but it was good to hear other moms talk about the things they feel guilty about and how they give themselves permission to let that go after a while. Best of all, while the subject matter was appropriate it didn't take so long that we missed out on the main attractions: chair massages, manicures, delectable food and excellent company.

I did meet a lot of new people, some whom I already knew from the H&V email list. I kept asking them where they were from and not knowing where that was; one mom teased me that I need to become a bus driver so I can learn my way around. I suspect my learning curve would monkeywrench some commuter's livelihoods. I got to sign with grown-up people, which I enjoyed, and my nails are still a rosy shade of pink. It adds a touch of elegance in the morning as I ask Paula if she's all done pooping.

The whole thing was a lot of fun. Karen (my friend from the summer institute) and my roommate Alese and I stayed up talking till midnight. We ate chocolate late at night and right after breakfast. We chatted and joked and just had fun. I slept all night in a comfy bed all by myself; I woke up too early but didn't have to get up until I was ready; I took a shower without anyone pounding on the door and shouting, "MOMMY!" All that was missing was a pillow fight, but there's always next year. I drove home feeling rejuvenated.

When I walked through my back door around noon, Paula was in Joel's arms, crying because she missed me. But I felt proud of how the two of them had made it through the previous night and that morning. Joel said Paula woke up once during the night and was crying for me. He said he put his mouth right next to her ear and said in a deep, loud voice, "Paula you can cuddle up and sleep with Daddy or stay here and cry by yourself."* Well, she cuddled right up, rubbed his beard with her hand and went to sleep. Atta girl.

The whole experience really filled up my tanks. I took Paula to the park Saturday afternoon, and yesterday she and I did some cooking together while Joel was at an audition. I had energy to play with her, instead of trying to get her occupied so I could go do something else. It felt great.

I have to say Paula just seems brighter every day. After meeting those other moms and hearing about how great their kids are doing I'm feeling pretty optimistic.

* Mom: I know that what Joel said sounded harsh, but he wasn't threatening her. He was giving Paula a chance to be her own agent and choose between two very different options. He was also letting her know that wrestling with a crying child was not on his to-do list for the next two hours. Win-win.


Posted at:Sun, Dec 03 2006 09:02:20 PM
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Wed, Nov 08 2006
Playing hooky

When I was just an innocent child at my grandmother's knee, I knew nothing of the wood "hooky." So when my grandmother told me the story of how she got caught doing it in high school, I made the puzzled dog face.

"What's playing hooky?" I asked her.

"That's when you sneak out of class and goof off instead of doing what you're supposed to," she told me, her tone balancing the memory of plainly enjoying said activity with the grown-up wisdom that it is Officially Discouraged.

Well, discouraged or not, that's what I've been doing.

Yesterday MY TOP SECRET CONTACT WHO SHALL NOT BE NAMED called in sick - and for the record, MY TOP SECRET CONTACT WHO SHALL NOT BE NAMED was sick; sick of work - and he and I spent the day frolicking like young, single, skinny people with no kids or body mass indices over 12. After Paula was delivered to school, we headed to Bridgeport, where we ate sumptuous and greasy Mexican food for breakfast. Then we headed downtown to see a matinee showing of Borat.

Oh, what a funny movie. Well, maybe it is, maybe it isn't; I would know if only I had read the listings correctly and we had actually seen the movie.

So we went with our contingency plan of skipping down the Magnificent Mile holding hands and occasionally craning our heads around like country bumpkins. We went into Crate and Barrel to admire the beautiful and practical items available there, which inspired MY TOP SECRET CONTACT WHO SHALL NOT BE NAMED to comment that if we allowed ourselves to purchase that stuff we would end up living in a crate and wearing a barrel. What can I say? MY TOP SECRET CONTACT WHO SHALL NOT BE NAMED makes me laugh.

We made it to Water Tower Mall and hit the Sharper Image store. A trip to Water Tower Mall is not complete without spending 45 minutes at full recline in the "surprisingly human-like" robotic massage chair. It really is surprisingly human-like, especially if all the humans you know are upholstered in black and have little balls rolling around underneath their skin.

We got steamed buns to go at Wow Bao (this was lunch, not another kind of robotic massage) and headed home. I was so pooped, because let's face it, I'm not very young, definitely not single or skinny, and I absolutely have a child who had kept me up for a couple of hours the night before. But playing hooky was worth it. I felt like a kid again, and I'm pretty sure my grandmother would have approved.


Posted at:Sun, Dec 03 2006 09:02:20 PM
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